Sunday, May 30, 2010

More of the Same?

Over the last two weeks, the deterioration of Russell's spine has rapidly increased. With it, the cancer presses against his spinal cord and the remaining vertebrae. This pressure causes radiating pain down through his ribs, wrapping his torso in a vice-like grip.

And the doctor says...

More of the same.

  • A large increase in the pain patch dosage.
  • Although the dosage on the oral pain med was doubled two weeks ago, the doctor ordered another administration and added 20 extra pills to cover the next 15 days.

So, that changes what?

  • The stronger transdermal dosage will cut down the number of patches I need to keep on him to combat the pain...we can come down to two at a time.
  • I now have to wake him up in the middle of the night to give him pain med.
  • Already it is easing his pain, even if it makes most of what he tells me or asks me only occasionally coherent.

Coming Full Circle

Just like a newborn, he needs care every two to four hours. Anyone would hate going from professional athlete to the shell of person for whom I care today. Day by day, and now hour by hour, ability slips away as quickly as it amassed in childhood.

Making Sure to Remember

Just as the morning "pretties" and the goose-down news are important memories, each day I grow to cherish more the present I demanded for our last wedding anniversary.

Family portraits of a time when we were healthy and happy.

Do not underestimate the joy pictures bring later in life when you look back fondly on the happy times. Do not underestimate the power those happy memories have to erase the sad memories at the end.

Celebrate with your spouse, your patient. Celebrate with your children, family, colleagues and friends. Make the most of each day by dancing like no one is watching.

Write that down!

As I have done here, take the time to write down the happenings, changes, successes and everything else. Why? Someone may be helped by what you write, whether in a similar walk to yours or a problem far removed. You may be passing strength to someone in need, even when you feel you have none of your own.

Time to dance,
Ann Marie

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